Did anyone else see this at PostSecret today? I was made aware of it by a post to the LiveJournal Fibromyalgia community. Reactions there are fairly negative because so many of us have had bad experiences with people who think…
Cortisol and FMS and CFS/ME?
There’s been a lot of buzz over the past week about a study published in the Journal of Chronic Fatigue Syndrome that suggests treating fibromyalgia and ME/CFS with cortisol (a steroid), based on the fact that most patients have low…
Free Screen Magnifier Software
This isn’t where I usually get geeky, but I think this utility might be useful to many readers. I get notices from the Giveaway of the Day and Game Giveaway Of the Day sites each day as to what they…
The Value of Education for Chronic Illness Patients
Paula Kamen, author of All In My Head, talks about the value of education in coping with chronic illness in an excellent editorial in the New York Times, Leaving the Rabbit Hole. This passage, in particular, spoke to me: The…
Excellent article: Pregnancy & Fibromyalgia: Lessons Learned and Other Random Thoughts
ButYouDontLookSick has a marvelous article up today: ButYouDontLookSick.com : Pregnancy & Fibromyalgia: Lessons Learned and Other Random Thoughts. I’m in the “0.08% chance of that happening” group, like the author. I was sick all the time throughout my one successful…
Responses to various comments about ME and FMS
Some of the comments are pretty old by now, but there are certain themes that come back, over and over again. I’ve decided to answer them once, and that’s it. ME and FMS are not “lifestyle” diseases. Researchers have found…
Working?
I’m working on a new podcast episode. Really! And I’d like very much to hear from you. Are you working? Have you had to change anything about work since developing a chronic illness? Have any of you gone back to…
Pain cures for women; Migraines from low-energy light bulbs
I’ve had these two stories bookmarked to post here for a bit, so it seems past time for me to actually do it. The best new pain cures, with a focus on women Many women have a tough time finding…
New Resource: Curehunter.com
Curehunter is an interesting addition to our online toolbox. It’s a visual medical dictionary. Here’s part of what it gives me when I look up fibromyalgia:
Not Dead Yet!
I haven’t given up on this blog, either. Or even the long-missing podcast! I don’t know why I haven’t posted in so long, honestly. I’ve been in a very quiet time, but it’s time to leave the shell. I have…