Fibromyalgia Resources

The fol­low­ing are resources I have found to be help­ful as a per­son with fibromyalgia.

Organizations

The fol­low­ing are specif­i­cal­ly help­ful for those who have fibromyal­gia or chron­ic fatigue syndrome.

• Fibromyal­gia Net­work pub­lished a real­ly great newslet­ter. There are still some arti­cles on the site, so I’m leav­ing it here.
• The Nation­al Fibromyal­gia Asso­ci­a­tion has a free online mail­ing list as well as offer­ing its print mag­a­zine to mem­bers and subscribers.
• The Nation­al ME/FM Action Net­work is a “Cana­di­an, reg­is­tered, non-prof­it orga­ni­za­tion ded­i­cat­ed to advanc­ing the recog­ni­tion and under­stand­ing of Myal­gic Encephalomyelitis/Chronic Fatigue Syn­drome (ME/CFS) and Fibromyal­gia Syn­drome (FMS) through edu­ca­tion, advo­ca­cy, sup­port, and research.”
• Sup­port Fibromyal­gia is, “a patient-cen­tered non­prof­it ded­i­cat­ed to edu­cat­ing and inspir­ing the Fibromyal­gia community.”

Books

This list is some­what dat­ed, but they’re still good books. I’m work­ing on check­ing out some new­er books.

• Fibromyal­gia & Chron­ic Myofas­cial Pain: A Sur­vival Man­u­al by Devin J. Star­lanyl & Mary Ellen Copeland
• The Fibromyal­gia Advo­cate: Get­ting the Sup­port You Need to Cope With Fibromyal­gia & Chron­ic Myofas­cial Pain by Devin J. Starlanyl
• Heal­ing through Trig­ger Point Ther­a­py: A Guide to Fibromyal­gia, Myofas­cial Pain and Dys­func­tion by Devin J. Star­lanyl and John Sharkey
• The Trig­ger Point Ther­a­py Work­book: Your Self-Treat­ment Guide for Pain Relief by Clair Davies

Tools

• If the weath­er affects how you feel, you might want to check the Aches and Pains Index Map from The Weath­er Chan­nel (for North America). 

Support Groups

• Devin Star­lanyl has a Face­book group, Fibromyal­gia, Myofas­cial Pain and Dys­func­tion. I got kicked out for (gen­tly) point­ing out that home­opa­thy is bunk, so be fore­warned that it’s a woo-heavy group.
• Fibromyal­gia Friends is one of the many help­ful groups at The Mighty