The following are resources I have found to be helpful as a person with fibromyalgia.
Organizations
The following are specifically helpful for those who have fibromyalgia or chronic fatigue syndrome.
- Fibromyalgia Network published a really great newsletter. There are still some articles on the site, so I’m leaving it here.
- The National Fibromyalgia Association has a free online mailing list as well as offering its print magazine to members and subscribers.
- The National ME/FM Action Network is a “Canadian, registered, non-profit organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome (FMS) through education, advocacy, support, and research.”
- Support Fibromyalgia is, “a patient-centered nonprofit dedicated to educating and inspiring the Fibromyalgia community.”
Books
This list is somewhat dated, but they’re still good books. I’m working on checking out some newer books.
- Fibromyalgia & Chronic Myofascial Pain: A Survival Manual by Devin J. Starlanyl & Mary Ellen Copeland
- The Fibromyalgia Advocate: Getting the Support You Need to Cope With Fibromyalgia & Chronic Myofascial Pain by Devin J. Starlanyl
- Healing through Trigger Point Therapy: A Guide to Fibromyalgia, Myofascial Pain and Dysfunction by Devin J. Starlanyl and John Sharkey
- The Trigger Point Therapy Workbook: Your Self-Treatment Guide for Pain Relief by Clair Davies
Tools
- If the weather affects how you feel, you might want to check the Aches and Pains Index Map from The Weather Channel (for North America).
Support Groups
- Devin Starlanyl has a Facebook group, Fibromyalgia, Myofascial Pain and Dysfunction. I got kicked out for (gently) pointing out that homeopathy is bunk, so be forewarned that it’s a woo-heavy group.
- Fibromyalgia Friends is one of the many helpful groups at The Mighty