TotD: Written On the Body

I’d nev­er heard of Writ­ten on the Body by Jeanette Win­ter­son (or of the author, at all) until I was brows­ing through some of the quo­ta­tions at Gaia a while back. This bit is too long for my quo­ta­tions file, but I love it too much to just delete it. “You’ll get over it…” It’s […]

The Value of Education for Chronic Illness Patients

Paula Kamen, author of All In My Head, talks about the val­ue of edu­ca­tion in cop­ing with chron­ic ill­ness in an excel­lent edi­to­r­i­al in the New York Times, Leav­ing the Rab­bit Hole. This pas­sage, in par­tic­u­lar, spoke to me: The worst thing, to me, about hav­ing a non-stop mul­ti-year headache isn’t nec­es­sar­i­ly the pain. Or the […]

Responses to various comments about ME and FMS

Some of the com­ments are pret­ty old by now, but there are cer­tain themes that come back, over and over again. I’ve decid­ed to answer them once, and that’s it. ME and FMS are not “lifestyle” dis­eases. Researchers have found genet­ic, neu­ro­log­i­cal, and car­di­o­log­i­cal anom­alies, so get off that blame-the-vic­­tim bull­shit. We know bet­ter. We’ve […]

Pain cures for women; Migraines from low-energy light bulbs

I’ve had these two sto­ries book­marked to post here for a bit, so it seems past time for me to actu­al­ly do it. The best new pain cures, with a focus on women Many women have a tough time find­ing the right kind of relief for their pain—and for good rea­son: Until recent­ly, experts had­n’t actu­al­ly studied […]

Wow

The pain man­age­ment doc gave me a break­through pain med for the first time, because of the new diag­no­sis. It’s more morphine—just an instant-release ver­sion, this time. Sam got it filled for me yes­ter­day. I did­n’t expect a huge dif­fer­ence, hon­est­ly. It’s the same thing I’ve been tak­ing, right? At a quar­ter dose, even! Wow. There […]

Scattered

I’ve seen this all over the place, so I can’t real­ly cred­it where I got it: If there is some­one on your friends list who makes your world a bet­ter place just because they exist and who you would not have met (in real life or not) with­out the inter­net, then post this same sen­tence in […]

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