How do you feel when you return home at the end of the day?
Posted by Cyn | Filed under Health, Home, NaBloPoMo
The NaBloPoMo prompt for today:
How do you feel when you return home at the end of the day?
I’m not sure I should have answered this one, as I doubt that my answer will be in sync with the intent of the question. I don’t leave home every day to go to work, or leave home every day, period.
However, when I do leave home, how I feel when I return depends on many factors. How did I feel before leaving? How long was I gone, and how much physical, intellectual, and emotional energy did I have to expend while I was out? Did I have to deal with anything unexpected, good or bad? How many people was I around? Were they strangers or people known to me? Did I encounter them all at once, or in small groups of one or two at a time? Was Sam with me as a buffer? fHow’s my blood sugar? Am I well hydrated? What was the weather like? Did I remember to take my regular medications? What about taking breakthrough pain medication, anxiety medication, or a muscle relaxant before I found myself in a state where they wouldn’t work very well? Did I use my scooter if there was much walking? How noisy was the environment? Was it drafty, or overly hot or cold? Did I have to drive? Was I out to do something I wanted to do, or was I doing something I had to do?
Frequently, I’m so dog-tired that I can barely drag myself in the door. I have actually fallen asleep sitting in the car, in the driver’s seat, more than once. (There are plenty of reasons that I do not drive much any more.) Dealing with the security system seems an intellectual challenge designed for Einstein. I’m easily confused and my memory is beyond poor. Even if I am dehydrated or I need to eat, I’m too tired to be interested in food or even water. If I was out for too long, or if it was a particularly stressful period, I get a fever and my body reacts as if I’m in shock. I feel like I’m freezing, no matter what the actual temperature around me is, and I start shaking badly.
So that’s how I feel most days when I return home at the end of the day, if I’ve had to leave home. I think that should go a long way towards explaining why I’m such a homebody these days! I am fortunate in that I have Sam, Katie, and others in my life, so I am able to have a fulfilling life without being very adventurous.
Tags: chronic fatigue syndrome, chronic illness, fatigue, Fibromyalgia, Health, Home, myalgic encephalomyelitis, NaBloPoMo
The Girl Is Better! And More Reading
Posted by Cyn | Filed under Family, Health, Reading
That’s a relief. I was getting quite worried. She spent most of the weekend sleeping or looking like a zombie, eating only what Sam could coax into her, and using heating pads. I’m starting to think that we should accept the offer to refer her to a pain management doctor, if only to have something she can take during a flare.
So I read the latest Anita Blake novel, Blood Noir. I’m not sure why I continue to read these. Honestly, Hamilton is a decent writer. I enjoy her prose. She just needs to go back to plot school! Or maybe work with a co-writer who is strong on plot, but not relationships or descriptions?
There was no plot at all for the first few hundred pages of the book. When something involving a previous “big bad” did happen, it was nothing but an inconvenience, and over within an hour of Anita finding out about it. Whoopee. There was a crisis and danger, of course, but I found them anticlimactic after the villains Anita has vanquished in the past.
There was, of course, lots of sex. This one could have been called, “Anita gets a fuck buddy.”
Oh well. On to Sunshine by Robin McKinley. Someone recommended it to me years ago, and I happened to see McKinley’s name somewhere and remembered it. I don’t think that I’ve read any of her novels before. Short stories, maybe.
Tags: Anita Blake, Books, Fibromyalgia, Katie, Laurell K. Hamilton, reviews, Robin McKinley
Rant at Fibrant Living
Posted by Cyn | Filed under Health
If you have fibromyalgia, or care about anyone who does, please read and respond.
Tags: abortion, bigotry, Fibromyalgia, hate speech
Fibrant Living: FMS or Depression?
Posted by Cyn | Filed under Health
I posted over at Fibrant Living today, about the difference between fibromyalgia and depression.
Tags: depression, Fibrant Living, Fibromyalgia, FMS, psychology
Interview: Chronic Pain and Sex
Posted by Cyn | Filed under Health, News, Relationships, Sex
The interview we did is up!
Chronic Pain and Sex: a Couple’s Gentle Battle With Fibromyalgia
I’m pleased with it. There are very few, mostly immaterial inaccuracies.
Tags: ABC, Aina Hunter, arthritis, chronic fatigue syndrome, Fibromyalgia, intimacy, pain, Relationships, Sam, Sex
Whoops! Yesterday was FMS/CFW Awareness Day!
Posted by Cyn | Filed under Family, Health
I intended to post and maybe even try to get a podcast out, but ended up using my energy to do an interview with a reporter. I don’t know when the piece will come out (it wasn’t for awareness day–that was just an amusing coincidence), but I’ll let you know when/if I hear anything.
She also interviewed Sam, since the topic was “fibromyalgia and intimacy.” He’s so wonderful!
Tags: Awareness Day, chronic fatigue syndrome, Fibromyalgia, interview, journalists, May 12
Steroids for FMS/CFS/ME?
Posted by Cyn | Filed under Health
Today’s post is at Fibrant Living.
Tags: chronic fatigue syndrome, Fibromyalgia, Health, steroids
Adult: FMS from What?
Posted by Cyn | Filed under Geekery, Humor, News, Sex
I have a Google Alerts search going for “fibromyalgia,” because if there’s something out there that will make this crap better, I want to know it yesterday. The alert brings in all sorts of nonsense from quack remedies to naysayers, in addition to the actual content.
Today’s alert takes the cake, though. Somebody wrote to Dan Savage’s Savage Love column asking, “Can I Sue Somebody for Fisting-Induced Fibromyalgia?“1
Savage’s medical expert is out of touch regarding the latest FMS research, but I have to agree with his reply to the letter-writer.
Sam and I tried to game a little tonight, but he was sleepy and I’m fading, too. I did some writing today, and more webifying, and worked on a couple of school assignments. Then I got all-too-obsessed with trying to figure out how to make the output of a couple of WordPress plugins work nicely with my template.
I hope y’all had a lovely weekend!
1 http://www.villagevoice.com/people/0806,savage,79044,24.html
Tags: Dan Savage, Fibromyalgia, Gaming, Google, HTML, Sam, Savage Love, school, search going, Sex, Sue Somebody, webifying, wordpress, Writing