NOT Helpful Suggestions

Eunice Beck, RN, on Coping with Flares and Mental Health

I’m having an invisible spell again, or at least my disease is. Let me try to explain. In the first place, I’m in a major flare, which isn’t helping my mental health, as we try to get my meds adjusted to give me at least some control over my life. Because of my increased pain level, more friends and family have heard my expressions of discomfort or seen my difficulty getting around. Because I get exactly the type of response I’m talking about, I generally try not to say too much unless it is to close family and friends who I think have some grasp of what it is like having this disease. Even one of them will surprise me once in a while, showing me how little they really understand.

Current Mood: 🙁uncomfortable
Cyn is Rick's wife, Katie's Mom, and Esther & Oliver's Mémé. She's also a professional geek, avid reader, fledgling coder, enthusiastic gamer (TTRPGs), occasional singer, and devoted stitcher.
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