How do you explain your illness to those who don’t have it? While I haven’t come up with a good way to explain chronic fatigue syndrome, I describe fibromyalgia as a full-body migraine. Anyone who has ever had a migraine…
The Geek Who Understands You
How do you explain your illness to those who don’t have it? While I haven’t come up with a good way to explain chronic fatigue syndrome, I describe fibromyalgia as a full-body migraine. Anyone who has ever had a migraine…
While I doubt the IRS is going to let us claim iPods as medical equipment for tax deductions any time soon, it’s well worth experimenting to see what music soothes each of us. From BBC News via the Net-Gold list:…
For a time, at least. Sam picked up a wheelchair yesterday that I’ll be using for the next month (hopefully no more than that) while recovering from a hospital stay. No, I hadn’t imagined how much I dislike hospitals. The…
I’ll record episode 3 as soon as my sound tech (aka Sam, my partner) is available. Right now, though, I’m in the mood to plump up my blogroll. Suggest other blogs and podcasts about fibromyalgia, chronic fatigue, or chronic illness,…
I must apologize for my absence here and the lack of a podcast last week! I’ve just gotten home from a brief hospital stay, and I didn’t have internet access there. I have plenty of material to cover, although it…
I’m back home from a couple of days in the hospital, with a new diagnosis and all that entails, plus related fibro flare. Nobody likes hospitals, and people with fibromyalgia deal with it even more poorly than others. I could…
Dyspareunia is one of the common symptoms of fibromyalgia, or as a co-existing problem. I don’t usually look at Wired for this kind of thing, but the article When Sex Is a Pain has some good ideas for dealing with…
Fibrant Living Episode 2 is up!
Episode 2 This week we talked about distractions, delegating, and defining yourself. I recommended Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness by Jon Kabat-Zinn as a good introduction to mindfulness,…
I’ve posted about online resources, as well as mentioning some periodicals that are good offline resources. Now I want to share some of the books I recommend to others who are learning more about fibromyalgia. The First Year: Fibromyalgia: An…
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