How do you explain it?

How do you explain your ill­ness to those who don’t have it?

While I haven’t come up with a good way to explain chron­ic fatigue syn­drome, I describe fibromyal­gia as a full-body migraine. Any­one who has ever had a migraine under­stands imme­di­ate­ly, and most peo­ple at least know some­one who does have dis­abling migraines.

If some­one wants more info, I can go on about the fact that fibromyal­gia is a neu­ro­log­i­cal dis­or­der and talk about recent research. If they’re real­ly curi­ous, I can hand them a paper I wrote.

Help me out here, please? What’s the best brief, “gets to them” descrip­tion you know of for your chron­ic illness?

Cyn is Rick's wife, Katie's Mom, and Esther & Oliver's Mémé. She's also a professional geek, avid reader, fledgling coder, enthusiastic gamer (TTRPGs), occasional singer, and devoted stitcher.
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One thought on “How do you explain it?

  1. I use “like being beat­en up and then run over by a truck”.

    Stum­bled across the blog via Cyn­thi­a’s blog by way of the Stitch­ers Blog­gers Week­ly Ques­tion. I passed it on my to my mom. I’m 23 and a sec­ond gen­er­a­tion suf­fer­er who’s still fig­ur­ing out how to cope with it and keep work­ing for a while.

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