Sick Baby

We took shad­owkatt back to the doc­tor again today. All her lab tests were pret­ty nor­mal. She’s still extreme­ly fatigued and is in more and more pain, though. We think there’s a com­bi­na­tion of virus (as curiousmay9 has the fatigue/throat too), an aller­gic reac­tion to SOMETHING, and pos­si­bly fibromyal­gia get­ting more significant.

The doc­tor ordered chest x‑rays, an echocar­dio­gram, and genet­ic screen­ing tests as well. She reduced one med­i­cine and added anoth­er, still seek­ing the right com­bi­na­tion to help the girl with her sleep.

The doc­tor is inves­ti­gat­ing the pos­si­bil­i­ty of Mar­fan Syn­drome. I’ve nev­er heard of any­one in our fam­i­ly hav­ing it, but I don’t know about her pater­nal lines and my fam­i­ly has­n’t ever been good about get­ting good health care.

After the var­i­ous tests results are in, the doc­tor will refer shad­owkatt to an ortho­pe­dic doc­tor to check out her extreme­ly hyper­mo­bile joints. They’re pop­ping out of place more and more, which is painful. The poor kid fell this morn­ing when her knee sud­den­ly popped out of place!

I’m hop­ing to get a refer­ral to a phys­i­cal ther­a­pist who can start work­ing with Katie on build­ing up the right mus­cles to bet­ter sup­port her joints. Learn­ing what she needs to do that won’t hurt her more, but will work, will be a good start.