Categories

A sample text widget

Etiam pulvinar consectetur dolor sed malesuada. Ut convallis euismod dolor nec pretium. Nunc ut tristique massa.

Nam sodales mi vitae dolor ullamcorper et vulputate enim accumsan. Morbi orci magna, tincidunt vitae molestie nec, molestie at mi. Nulla nulla lorem, suscipit in posuere in, interdum non magna.

An Update Instead of a Book Review!

I looked back at my recent entries and real­ized that it’s been a real­ly long time since I post­ed much of any­thing sub­stan­tive. I’m com­ing out of a long peri­od of being near­ly zom­biefied thanks to one of my med­ica­tions. I did­n’t real­ize that was hap­pen­ing, as I’d been on that drug for years with­out that prob­lem. Appar­ent­ly, the prob­lem was a com­bi­na­tion of my dosage being increased last fall and inter­ac­tion with oth­er meds. Unfor­tu­nate­ly, I found this out because of an irre­spon­si­ble doc­tor who refused to see me as sched­uled when I was due for refills, and would­n’t give me refills with­out see­ing me. Crash­ing off the max­i­mum dose caused insom­nia and seizures.

Yes, seizures. Some­thing I have nev­er expe­ri­enced before, and I real­ly did­n’t need to add yet anoth­er square to my per­son­al Symp­toms Bin­go Card. I fell right out of the bed dur­ing one bad seizure last week. We have a cap­tain’s bed designed for a water mat­tress, but have a reg­u­lar mat­tress and box springs on top, so the whole thing is much high­er than most beds. I have to use a step­stool to get in and out of bed. So falling out was much more painful than falling out of most beds. Hit­ting my fore­heard on the wheel­chair and whacked my chin but good on the lapdesk did­n’t help. I have no idea what I hit with my right fore­arm, but it still looks like a per­son bit me. My left arm has funky bruis­ing and a cut, both knees are bruised and car­pet burned, and my tor­so is also bruised and sore. Lots of fun! Now my chin is actu­al­ly black, mak­ing me want to wash my face every time I see a mir­ror. I’ve nev­er been able to feel the swelling in a bruise as dis­tinct­ly as this one, either.

I’ve seen a new doc­tor, who switched me to a bet­ter med­ica­tion. It’s help­ing to slow down the seizures, but I’m still hav­ing some. I’m still sleep­ing a lot less than I was, which is good. What isn’t good is that I’m hav­ing trou­ble sleep­ing well, peri­od. Hope­ful­ly that will go away soon.

Social Secu­ri­ty is still mess­ing around with my case and has­n’t paid out a dime yet, or sent me a Medicare card. If you ever have trou­ble with the SSA, don’t even both­er try­ing to find any­one to take respon­si­bil­i­ty for straight­en­ing any­thing out. Just go straight to your Sen­a­tor or Rep­re­sen­ta­tive’s office. I’d been try­ing to get a straight answer from some­body, any­body, in the whole orga­ni­za­tion for about a month with­out luck. Less than 48 hours after con­tact­ing a Sen­a­tor’s office, I got a mes­sage that my file is at the Bal­ti­more pay­ment office, that they have all the infor­ma­tion they need to pay out the claim, and that we should see mon­ey very soon now.

I was real­ly hop­ing to get the Medicare thing start­ed in time to maybe have a pow­ered mobil­i­ty device before Drag­on Con, which would let me go and enjoy the con for the first time in years. The last time I went, we rent­ed a scoot­er, so if the mon­ey comes through before the con I sup­pose we might try that again.

In more fun news, we fin­ished watch­ing Torch­wood: Chil­dren of Earth last night. Talk about depress­ing! Gwen and Rhys were the only ones who came out of that as heroes. And now I read that there’s going to be a fourth sea­son? Who the heck will be in it?

I’ve slowed down on read­ing books, par­tial­ly because I can actu­al­ly do some oth­er things for a change. The house is slow­ly improv­ing! I’m hop­ing we can even enter­tain again before long.

I haven’t been keep­ing up with most peo­ple’s Live­Jour­nals or any­thing else, so if there’s some­thing I should have seen, I’d appre­ci­ate a poke in the com­ments here.

2 comments to An Update Instead of a Book Review!

  • Sor­ry to hear about the meds, but glad to hear you are doing bet­ter now. Hope you can make it to Drag­oncon 🙂

  • I was­n’t plan­ning to go, but if the SS mon­ey comes through, I think I will. If so, I’m hop­ing we can find a hotel room that isn’t too far away (of course, that’ll be a mir­a­cle). I’d love to meet you two in per­son!

Leave a Reply