That A/C thing

Appar­ent­ly the fil­ter for the unit is miss­ing, and the coils need to be cleaned. There’s no obvi­ous sign of mold/mildew, but Sam says that fresh air is com­ing into the bed­room via the unit, and our neigh­bors on that side have been burn­ing some­thing in their back yard.

I found the web site for the man­u­fac­tur­er, and of course the man­u­al for our mod­el isn’t there. The self-ser­vice sec­tion of the site does men­tion that the coils need to be cleaned, but does­n’t say how to do it. I sus­pect that it involves coil clean­er and a hose. Coil clean­er seems to come with a/c ser­vice peo­ple. I’ll have to ask my father if we can get some and use it safe­ly.

Sam remem­bers a fil­ter, but has­n’t seen it since we moved here, so we may have to order a new one from the com­pa­ny. Of course, their not-help­ful site does­n’t have any infor­ma­tion about parts, either. So I sent them an e‑mail, and hope that they’ll reply.

They asked me to do a review about my expe­ri­ence with their site. That was prob­a­bly a mis­take on my site, but I did it. Their rat­ings may have just plum­met­ed.

Now the girl and I need to get to work get­ting the house ready for our Dragon*Con guest next week. I hope the “guest room” isn’t too hot for him! Maybe I should put up a Freecy­cle post look­ing for anoth­er win­dow unit?

I’m Allergic to Our Bedroom

More specif­i­cal­ly (I hope), some­thing in it. Not Sam, hap­pi­ly, but every time I go in there, I’m all stuffed up with­in a few min­utes.

We keep that room closed and have a win­dow a/c unit in there, because the house a/c just does­n’t keep up so well.1 I’m won­der­ing if there’s some­thing about the air not cir­cu­lat­ing to the rest of the house that’s caus­ing dust to set­tle in there?

The cat is sel­dom allowed in the room at all, and we don’t have any oth­er pets. There aren’t any plants in the room.

We haven’t been using the air clean­ers, because I can only get their fil­ters by mail-order and just did­n’t get around to get­ting new ones. I guess I need to order them and see if that helps.

Bah.

In nicer news, the girl and I went to the nice library today. I had gone through my “to-read” shelf at Good Reads and request­ed a bunch of books. More of them than I expect­ed came through all at one time, where­upon I learned that they allow a max­i­mum of 75 books to be checked out at once. Whoops! I had to put two back.

I have plen­ty to read now, though!


1 We had to put a unit in Katie’s room, too–it real­ly was­n’t fac­tored in to the ton­nage on the a/c unit when some­one fin­ished a for­mer garage, and it does­n’t have enough ducts. Now we need one for the guest room.

Responses to various comments about ME and FMS

Some of the com­ments are pret­ty old by now, but there are cer­tain themes that come back, over and over again. I’ve decid­ed to answer them once, and that’s it.

ME and FMS are not “lifestyle” dis­eases. Researchers have found genet­ic, neu­ro­log­i­cal and car­di­o­log­i­cal anom­alies, so get off that blame-the-vic­tim bull­shit. We know bet­ter. We’ve done the diet and exer­cise dance. We’ve tried air-clean­ers and remov­ing tox­ins and nat­ur­al cleansers and vit­a­mins and health foods, and while some of them are nicer than the alter­na­tives, they can­not cure chron­ic fatigue syn­drome or fibromyal­gia because they are not part of the cause.

While we’re at it, no, alien abduc­tions don’t cause FMS, either. I know you’re laugh­ing, but there real­ly is site out there that makes such claims. No, I won’t link to it. It’s bad enough that it exists!

“Chron­ic Fatigue Syn­drome” is a total­ly inad­e­quate name for a dis­or­der whose suf­fer­ers expe­ri­ence far, far, more than a lit­tle tired­ness. That’s why we have a new and bet­ter name for CFS, as of Jan­u­ary 2007: ME/CFS, or myal­gic encephalopathy/chronic fatigue syn­drome. The dis­ease has been known as ME all along in the rest of the world, although some­times the acronym was used for myal­gic encephalomyelitis. Per­son­al­ly, I pre­ferred one of the oth­er sug­ges­tions, chron­ic neu­roen­docrineim­mune dys­func­tion syn­drome (CNDS), but I was­n’t on the com­mit­tee.

I would hap­pi­ly rename fibromyal­gia “you don’t want to be me” or “betray­al by entire body, tak­ing your mind with it,” but I don’t think any­body is sug­gest­ing that it be renamed. The name just does­n’t seem ade­quate to its impact, though it’s a lit­tle bet­ter than some of the old­er names, like “rheuma­tism.”

To oth­ers who have said “pre­ven­tion is bet­ter than cure.” Well, yes, and “a stitch in time saves 9.” Yup. I’ve got plen­ty of apho­risms, too. Tell me, pray, how one “pre­vents” dis­or­ders whose ori­gin is unclear? As I said above, researchers have iden­ti­fied genet­ic anom­alies. We have fair­ly good evi­dence that fibromyal­gia, at least, has a genet­ic com­po­nent. We’ve got brain scans show­ing that fibromites’ brains react dif­fer­ent­ly to painful stim­uli, and oth­er tests show­ing that our spinal flu­id has much high­er lev­els of a neu­ropep­tide involved in trans­mit­ting pain impuls­es than non-fibromites.

With that in mind, how would you go about “pre­vent­ing” fibromyal­gia? Advis­ing us not to breed? Many of us have already done so by the time we’re diagnosed—and, of course, that can’t help us when we’ve already got the dis­ease. We can use our own diag­noses as warn­ings that our own chil­dren may have a sus­cep­ti­bil­i­ty to fibromyal­gia, but what then? Smoth­er them in cot­ton bat­ting, to keep them from expe­ri­ence any stres­sors in life that might set off the FMS bomb in their genes?

Being fat does­n’t cause ME or FMS, either, although it’s com­mon to gain weight after devel­op­ing either dis­or­der. I don’t know any­one who is able to main­tain the lev­el of activ­i­ty he or she did before falling ill, and many of the drugs used to treat the symp­toms of these dis­or­ders cause weight gain. Los­ing weight is even more dif­fi­cult for us than for oth­er peo­ple. Telling us that we’d feel bet­ter if we lost weight is not help­ful in the least. I’ve nev­er once heard of any­one who was “cured” of FMS or ME because he or she lost weight—and if it were hap­pen­ing, I would know it, because I pay a lot of atten­tion to these things.

Even if I thought weight loss offered a “cure,” or even ame­lio­ra­tion of symp­toms, I see no rea­son to dis­cuss drugs like Xeni­cal at any length. Any drug or pro­ce­dure promis­ing weight loss will has an easy time get­ting approved because of our soci­ety’s hatred of fat peo­ple. Fen-phen, any­one? “Oh, the drug will kill some patients, or leave them with per­ma­nent heart dam­age? Hell, it’s worth it if there’s a chance of los­ing weight!” The weight-lossself-hatred indus­try has more than enough mon­ey and pow­er to lube their way past any flim­sy lit­tle reg­u­la­tions stand­ing in their way.

Diet and sports and their rela­tion to weight are anoth­er thing all togeth­er, and beyond the scope of this blog. I rec­om­mend you to peruse the worlds of the delight­ful Sandy Szwarc over at Junk­food Sci­ence, who does cov­er that top­ic, fre­quent­ly, thor­ough­ly, and well.