Resource for Chronic Pain Sufferers

The Amer­i­can Chron­ic Pain Asso­ci­a­tion site says the group has been around since 1980, but I had­n’t run across them until yes­ter­day. I spent some time on their site and they have some real­ly good resources as well as a long list of sup­port groups. There aren’t any groups near me, but I think I’ll […]

Being an Active Part of Your Own Health Care Team, Part II

It has only tak­en me ten years since my first arti­cle to return to this top­ic! I always intend­ed to do so, but life got in the way. In that first arti­cle, I large­ly addressed med­ica­tion issues. Now we’re going to talk about being your own patient advo­cate. What is a patient advo­cate? It’s an individual […]

Being an Active Part of Your Own Health Care Team, Part I

Peo­ple who have chron­ic or com­plex health issues need to take an active role in their own health care. That does­n’t come nat­u­ral­ly to every­one, and in fact, it runs counter to the tra­di­tion­al way of inter­act­ing with “Doc­tor God” that I, for one, learned from my own par­ents. In this series, we’ll talk about […]

Fight Brain Fog!

Or, at the very least, give your­self more resources to fight it! Cog­ni­tive abil­i­ties are like mus­cles, in that they have to be devel­oped and exer­cised reg­u­lar­ly, even stretched to keep them flex­i­ble. We can’t nec­es­sar­i­ly avoid the cog­ni­tive deficits that come with some of our ill­ness­es, or as a side effect of our med­ica­tions. What […]

Hope for Pain Relief

I’ve known of mind­ful­ness prac­tices for sev­er­al years, and read Full Cat­a­stro­phe Liv­ing: Using the Wis­dom of Your Body and Mind to Face Stress, Pain, and Ill­ness by Jon Kabat-Zinn sev­er­al years ago. It is one of the books I’ve rec­om­mend­ed on this blog in the past.  I have only recent­ly, though, tru­ly com­mit­ted myself to […]

Long Term Opiate Use Safe; One Woman’s Experience With Savella

There are two great arti­cles from Karen Lee Richards in Health­Cen­tral’s Chron­ic Pain Con­nec­tion newslet­ter today. The first, Long-Term Opi­oid Ther­a­py — What Are the Effects?, brings us the results of Dr. For­est Ten­nan­t’s ground-break­ing study. He eval­u­at­ed 24 chron­ic pain patients from 30 to 79 years old who had been using opi­oids for 10 […]

Tips and Tools for Working From Bed

I’ve nev­er encoun­tered this web­site before, but it was linked from a blog car­ni­val, and the arti­cle is pret­ty good: Because Sit­ting up is for Suck­ers: 70+ Tools, Tips and Hacks to Work from Bed I still miss my lap­top! And I have a pret­ty nice set­up, but can’t help drool­ing at this: the Ergo­pod 500. […]

Review: Women, Work and Autoimmune Disease

I read Women, Work and Autoim­mune Dis­ease by Ros­alind Joffe and Joan Fried­lan­der a few months back, but for some rea­son, my review on Ama­zon took a while to show up, and I did­n’t think to keep a copy for myself. It seems to final­ly be there now, so I’ll put it here, too (slight­ly […]

Free Screen Magnifier Software

This isn’t where I usu­al­ly get geeky, but I think this util­i­ty might be use­ful to many read­ers. I get notices from the Give­away of the Day and Game Give­away Of the Day sites each day as to what they have avail­able that day. They make arrange­ments with var­i­ous soft­ware pub­lish­ers to dis­trib­ute com­mer­cial software […]

The Value of Education for Chronic Illness Patients

Paula Kamen, author of All In My Head, talks about the val­ue of edu­ca­tion in cop­ing with chron­ic ill­ness in an excel­lent edi­to­r­i­al in the New York Times, Leav­ing the Rab­bit Hole. This pas­sage, in par­tic­u­lar, spoke to me: The worst thing, to me, about hav­ing a non-stop mul­ti-year headache isn’t nec­es­sar­i­ly the pain. Or the […]

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