Well, I owe you all an apology. This blog has been abandoned for four years, and a lot has happened in that time.
Katie is married, about to finish college, and expecting her first child!
I went back to work in 2013! I work from home, but I work full time doing technical support for Apple, Inc. as a Senior Technical Advisor. I hope to get back to doing QA, technical writing or business analysis (see my résumé if you’re interested!) but this is a great start. I’ve worked for three years now, so I’ve proven to myself that I can work reliably.
I’ve been diagnosed with Ehlers-Danlos Syndrome (hypermobility type), which explains a great deal, like the fibromyalgia symptoms. EDS is a genetic disorder that affects the connective tissues and, in our case, leads to loose, frequently dislocated joints and chronic pain. (I had asked a pediatric rheumatologist about EDS in Katie many years ago but he blew us off.) EDS is a genetic disorder and there’s evidence of it in two generations of our family, with anecodatal data of it in a third. The fourth generation hasn’t been tested yet but I’m hoping she will be.
The symptoms are still the same, as is the management. I’m on the same medications for management—Lyrica, with occasional opiates and muscle relaxants for breakthrough pain. I stopped taking narcotics on a regular basis a few years back so that I could return to work. Controlling stress is very important, and building up the muscles around joints in order to avoid dislocations is, as well. There’s a lot of documented trouble with dysautomnia, particularly Postural Orthostatic Tachycardia Syndrome (POTS), which I seem to have but haven’t taken the nasty tilt table test to have confirmed yet.
But I’m able to work, which is the important thing. I’m in a stable, supportive relationship with my partner Rick, who has no online presence to speak of. We live in metro Atlanta with our dog Harpo and cats Django and Tully and a varying number of kittens fostered from Lifeline Animal Project.
So that’s me. What about you?