I’m a Mémé!

My grand­ba­by has arrived! So we’re short on sleep, but long on love and joy! Mov­ing up here, the new baby and asso­ci­at­ed sleep loss, change in gen­er­al — they all lead to increased pain. I don’t take any nar­cot­ic pain med­ica­tions any­more because the opi­ates just did­n’t pro­vide enough relief to be worth the has­sle of […]

Fight Brain Fog!

Or, at the very least, give your­self more resources to fight it! Cog­ni­tive abil­i­ties are like mus­cles, in that they have to be devel­oped and exer­cised reg­u­lar­ly, even stretched to keep them flex­i­ble. We can’t nec­es­sar­i­ly avoid the cog­ni­tive deficits that come with some of our ill­ness­es, or as a side effect of our med­ica­tions. What […]

Tips and Tools for Working From Bed

I’ve nev­er encoun­tered this web­site before, but it was linked from a blog car­ni­val, and the arti­cle is pret­ty good: Because Sit­ting up is for Suck­ers: 70+ Tools, Tips and Hacks to Work from Bed I still miss my lap­top! And I have a pret­ty nice set­up, but can’t help drool­ing at this: the Ergo­pod 500. […]

Episode 2

Episode 2 This week we talked about dis­trac­tions, del­e­gat­ing, and defin­ing your­self. I rec­om­mend­ed Full Cat­a­stro­phe Liv­ing: Using the Wis­dom of Your Body and Mind to Face Stress, Pain, and Ill­ness by Jon Kabat-Zinn as a good intro­duc­tion to mind­ful­ness, espe­cial­ly as a way to deal with chron­ic ill­ness. I also ref­er­enced Dr. Irene Tra­cy’s […]

Tip for Coping With Chronic Illnesses: Fun!

I don’t have a prob­lem with this, usu­al­ly. But I thought maybe some of my friends with FM could stand to hear it, too. And yes, I do occa­sion­al­ly need the reminder :-) Stock­pile fun dis­trac­tions. We all need to keep lists handy of the things that make us hap­py. One of the cru­el­ties of having […]

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