The Value of Education for Chronic Illness Patients

Paula Kamen, author of All In My Head, talks about the val­ue of edu­ca­tion in cop­ing with chron­ic ill­ness in an excel­lent edi­to­r­i­al in the New York Times, Leav­ing the Rab­bit Hole. This pas­sage, in par­tic­u­lar, spoke to me:

The worst thing, to me, about hav­ing a non-stop mul­ti-year headache isn’t nec­es­sar­i­ly the pain. Or the way it tends to dis­rupt inti­mate rela­tion­ships, emp­ty all finan­cial reserves, and sab­o­tage the best-laid career plans. It’s not even the end­less bar­rage of (albeit well-mean­ing) sug­ges­tions for “cures”from every­one you meet, most of which you’ve already tried any­way (except for the colon cleans­ing and the Jews for Jesus conversion).

No, it’s the emo­tion­al suffering—from all the guilt and the shame, of patients like me think­ing it’s our entire fault, and maybe all in our heads.


She also men­tions a good site for any­one who has prob­lems with migraines, Rob­bins Headache Clinic.

Cyn is Rick's wife, Katie's Mom, and Esther & Oliver's Mémé. She's also a professional geek, avid reader, fledgling coder, enthusiastic gamer (TTRPGs), occasional singer, and devoted stitcher.
Posts created 4248

One thought on “The Value of Education for Chronic Illness Patients

Comments are closed.

Related Posts

Begin typing your search term above and press enter to search. Press ESC to cancel.

Back To Top