Enemy of Entropy
An Update Instead of a Book Review!
CurÂrent Mood:
Surprised
I looked back at my recent entries and realÂized that it’s been a really long time since I posted much of anyÂthing subÂstanÂtive. I’m comÂing out of a long period of being nearly zomÂbiefied thanks to one of my medÂicaÂtions. I didn’t realÂize that was hapÂpenÂing, as I’d been on that drug for years withÂout that probÂlem. ApparÂently, the probÂlem was a comÂbiÂnaÂtion of my dosage being increased last fall and interÂacÂtion with other meds. UnforÂtuÂnately, I found this out because of an irreÂsponÂsiÂble docÂtor who refused to see me as schedÂuled when I was due for refills, and wouldn’t give me refills withÂout seeÂing me. CrashÂing off the maxÂiÂmum dose caused insomÂnia and seizures.
Yes, seizures. SomeÂthing I have never expeÂriÂenced before, and I really didn’t need to add yet another square to my perÂsonal SympÂtoms Bingo Card. I fell right out of the bed durÂing one bad seizure last week. We have a captain’s bed designed for a water matÂtress, but have a regÂuÂlar matÂtress and box springs on top, so the whole thing is much higher than most beds. I have to use a stepÂstool to get in and out of bed. So falling out was much more painful than falling out of most beds. HitÂting my foreÂheard on the wheelÂchair and whacked my chin but good on the lapdesk didn’t help. I have no idea what I hit with my right foreÂarm, but it still looks like a perÂson bit me. My left arm has funky bruisÂing and a cut, both knees are bruised and carÂpet burned, and my torso is also bruised and sore. Lots of fun! Now my chin is actuÂally black, makÂing me want to wash my face every time I see a mirÂror. I’ve never been able to feel the swelling in a bruise as disÂtinctly as this one, either.
I’ve seen a new docÂtor, who switched me to a betÂter medÂicaÂtion. It’s helpÂing to slow down the seizures, but I’m still havÂing some. I’m still sleepÂing a lot less than I was, which is good. What isn’t good is that I’m havÂing trouÂble sleepÂing well, period. HopeÂfully that will go away soon.
Social SecuÂrity is still messÂing around with my case and hasn’t paid out a dime yet, or sent me a Medicare card. If you ever have trouÂble with the SSA, don’t even bother tryÂing to find anyÂone to take responÂsiÂbilÂity for straightÂenÂing anyÂthing out. Just go straight to your SenÂaÂtor or Representative’s office. I’d been tryÂing to get a straight answer from someÂbody, anyÂbody, in the whole orgaÂniÂzaÂtion for about a month withÂout luck. Less than 48 hours after conÂtactÂing a Senator’s office, I got a mesÂsage that my file is at the BalÂtiÂmore payÂment office, that they have all the inforÂmaÂtion they need to pay out the claim, and that we should see money very soon now.
I was really hopÂing to get the Medicare thing started in time to maybe have a powÂered mobilÂity device before Dragon Con, which would let me go and enjoy the con for the first time in years. The last time I went, we rented a scooter, so if the money comes through before the con I supÂpose we might try that again.
In more fun news, we finÂished watchÂing TorchÂwood: ChilÂdren of Earth last night. Talk about depressÂing! Gwen and Rhys were the only ones who came out of that as heroes. And now I read that there’s going to be a fourth seaÂson? Who the heck will be in it?
I’ve slowed down on readÂing books, parÂtially because I can actuÂally do some other things for a change. The house is slowly improvÂing! I’m hopÂing we can even enterÂtain again before long.
I haven’t been keepÂing up with most people’s LiveÂJourÂnals or anyÂthing else, so if there’s someÂthing I should have seen, I’d appreÂciÂate a poke in the comÂments here.
And That’s the Week
I conÂsider SunÂday the first day of the week, rather than the last.
It was a week full of appointÂments for the girl, and getÂting paperÂwork shufÂfled to varÂiÂous bureauÂcraÂcies. Sam and I had lovely dates WednesÂday and tonight, although both of us were so exhausted WednesÂday that we turned in much earÂlier than usual.
