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Long Day

I spent so much time on var­i­ous bus­es today (or wait­ing for them) that I read half of Fifty Shades Dark­er and all of Fifty Shades Freed, then start­ed the first book of the Iron Druid Chron­i­cles by Kevin Hearne, Hound­ed. I can’t say how grate­ful I am to have my Nook on days like this. 

I’m exhaust­ed, though, and for the first time in a while I feel on the verge of a flare. I just can’t get warm and I don’t feel like I’ve real­ly recov­ered from a hypo­glycemic episode ear­li­er this evening, but I don’t want to eat any­thing. Every­thing hurts more than usu­al and I feel too tired to sleep, if that makes any sense. I can’t begin to count the num­ber of mis­takes I’ve had to cor­rect while typ­ing just this short post. Please for­give me for whichev­er ones made it past me.

Fibrant Living: Being an active part of your own health care team, part I

I start­ed a new series at Fibrant Liv­ing today about being an active part of your own health care team. It’s impor­tant for any­one, but vital for those of us with com­plex or chron­ic conditions.

I got to go to the library again today, thanks to Steven! We also had a great lunch at Johnny’s Piz­za. I have enough of my cal­zone left for anoth­er two meals, in fact (at least). 

Now I have five more books with which to con­tin­ue my stud­ies, so I should get on with it!

Jumpiness and Nerves

Back to the NaBloPoMo prompts:
What do you do to cope when you're nervous?

I have a whole mess of diagnoses, including post-traumatic stress disorder and social anxiety disorder, so I feel jumpy and nervous fairly often. I'm on medication that helps, and I have Ativan that I can take if I must for panic attacks. But I try really hard to use the Ativan, because 1) it can be addictive; and 2) it makes me sleepy. It makes far more sense to take advantage of the biofeedback techniques I learned years ago to try to get my heart rate and breathing under control. Cognitive behavioral therapy has also given me some valuable ways to examine the thought patterns that lead to panic attacks, so that I can try to short-circuit them before I get too wound up.

For less critical nerves, I find it important to keep my hands busy. I usuallly take a small stitching project with me wherever I go. Having my hands busy and keeping my mind partially occupied takes up enough of my energy to keep me from getting too wound up in nerves, most of the time. My stitching is the equivalent of other peoples' doodling or fidget toys.

Book Recommendation: The Mindful Way Through Depression

I've been responding to writing prompts instead of writing personal posts because I haven't had a lot to say publicly. I feel a need to stop now, though, and strongly recommend a book that I've been reading. The Mindful Way through Depression: Freeing Yourself from Chronic Unhappiness takes a very different approach to recovery from depression and anxiety, issues I've dealt with for more than 20 years. The book includes recorded Guided Meditation Practices narrated by Jon Kabat-Zinn, which are highly effective.

I'm finding the book's approaches very useful. I have hope of possibly recovering beyond just taking medication forever for the first time I can remember. I'd be interested in hearing feedback from others who are using the same approach.

Accessibility

When some­one asks, “Is (X place) acces­si­ble?” the answer is “no” if there are any stairs involved in get­ting there. It doesn’t mat­ter if every­thing inside X is on one lev­el but there are three “lit­tle” steps at the front door, or “just one flight of stairs out front.” Those “lit­tle” steps aren’t so lit­tle for those using scoot­er and wheel­chairs. The answer is also “no” if there is no whol­ly acces­si­ble bath­room near the main area. 

Just once, I’d like to arrive some­where to find a place tru­ly acces­si­ble instead of hav­ing some­one who’d claimed acces­si­bil­i­ty say, “Oh, I didn’t think about those lit­tle steps!” or “But that’s just one flight of stairs!” or some such stu­pid thing. Even though I hap­pen to be able to walk most of the time, if I’m using my scoot­er, there’s a rea­son for it. If I were to get off of it to walk up those few steps, where am I to store the scoot­er? 1 Plen­ty of oth­er peo­ple can­not walk up those steps. 

Why choose an inac­ces­si­ble place of busi­ness, any­way? Why are builders con­tin­u­ing to build inac­ces­si­ble res­i­dences? It isn’t expen­sive to build in acces­si­bil­i­ty in the first place, com­pared to ren­o­vat­ing for acces­si­bil­i­ty. Has all the talk of the aging of Amer­i­ca meant noth­ing with regards to home design? 

Every­one is just tem­porar­i­ly abled in the long run, any­way. If you buy or build a house, it pays to go ahead and con­sid­er whether or not it would still suit you if you were injured in some man­ner. Could you get around on crutch­es or in a chair? If (shock­ing thought) you were to want to enter­tain some­one who uses mobil­i­ty devices to get around, could that per­son even get in your front door? Any door? I’ve lived in places where the answer would be a resound­ing “No!” and even if we got the poor soul in through, say, the garage, she couldn’t get up to the liv­ing areas. 


1 A sig­nif­i­cant investment.