Enemy of Entropy

Archive for May 2009

YAY!

17 May 2009, 3:45 am. 1 Comment. Filed under Civil Rights, Health.

Cur­rent Mood:Esctatic emoticon Esctatic

We were fairly sure of this right after I finally had my Social Secu­rity hear­ing last month based on the very pos­i­tive state­ments from the judge, but I didn’t want to jinx any­thing. We got the offi­cial let­ter in the mail today, say­ing that the deci­sion was “fully favor­able!” SQUEE!

It will still take some time for that deci­sion to bounce around the bureau­cracy and get monthly pay­ments started, much less get the back pay from the SSA. Because the onset date was years ago, I should be eli­gi­ble for Medicare right away, but I’ll need to talk to the attor­ney about that on Monday.

I really needed some good news, so the tim­ing is marvelous.

This process has been an insane endurance con­test. The fact that the SSA has been absolutely obstruc­tion­ist through­out (and I know my expe­ri­ence is far from unique!) is ridicu­lous. The sys­tem demands that peo­ple who are most in need of help are least likely to get it in any timely fash­ion, because it takes so much per­sis­tence, jar­gon, and inside knowl­edge to get any­where. If you can do all those forms and gather all the records and so on by your­self, I don’t know that you should count as dis­abled! Even peo­ple with good sup­port in other ways don’t always have some­one will­ing, able, and per­sis­tent who can and will spend the hours and hours of time to push a claim through.

I started the fil­ing process for one rea­son: I needed sta­ble access to health­care so that I could get well enough to go back to work. Five years down the line, I’m not at all sure that I will be able to return to work, because my health has dete­ri­o­rated so much that it may not be pos­si­ble to get back to an “abled” state. How many years of pro­duc­tive lives are being in the U.S. wasted for lack access to healthcare?

I get annoyed every time I hear a talk­ing head refer to plans to “insure” every­one. That isn’t what we need! Plenty of peo­ple have health insur­ance and still don’t get the actual health care they need because they can’t afford the co-​​pays, or the insurer won’t cover a par­tic­u­lar drug or ther­apy, or there are pre-​​existing con­di­tion prob­lems, or…

We need health care. Not divided up by age (this for kids, that for seniors, some­thing else for work­ing age peo­ple, oh, right, the dis­abled here) by uni­ver­sal car, the same care for every­one, for the whole body, cra­dle to grave. (Who ever decided that eyes and teeth should be sep­a­rated out, any­way? That’s stupid.)

I read an art­cle about San Francisco’s health pro­gram last week – if I can find a link I’ll add it later. It does just what I described, from what that arti­cle says. I don’t know how much it costs to join, but appar­ently there’s a lot of out­reach to peo­ple who are oth­er­wise unin­sured. There are no pre-​​existing conditions.

Does any­one know of pro­grams like San Francisco’s else­where in the U.S.?

Cur­rent Mood: (excited) excited

Nifty! Know a girl aged 8 – 11?

15 May 2009, 12:41 am. Comments Off. Filed under Education.

Via the ines­timable [info]ideageek: Teach­ing girls to pro­gram
“Kids learn­ing to sto­ry­board, brain­storm, cri­tique, design, pitch ideas, psue­docode, actu­ally code, and make toys do things.”

Cur­rent Mood: (bouncy) bouncy

Dollhouse Fans? TV stuff

13 May 2009, 12:39 am. 8 Comments. Filed under Fun.

Do any of you maybe record Doll­house? We don’t do cable, so Katie and I have been watch­ing it stream­ing on Hulu. This com­ing Friday’s episode isn’t going to be streamed, though, and we don’t want to miss it. Any chance of some help? Pretty please?

It’s fairly amaz­ing how much you can find to watch online now. Legally! I used to get the CSI DVDs from Net­flix when they were released each year, and watch the whole sea­son in a marathon. Now we watch all three CSI shows on the CBS web site. The same goes for NCIS and Numb3rs. While the site says you can see full episodes of The Men­tal­ist, I haven’t found a way to do it. ABC has The Unusu­als and Cas­tle stream­ing. Burn Notice, Chuck, Bones, and Lie to Me are all on Hulu.

There’s another show we watch once every few weeks, um, Leg­end? Leg­ends? Some­thing about a Seeker. I can’t han­dle more of it than that, because the plots rely heav­ily on stu­pid­ity. That’s too annoy­ing, and while there are pretty peo­ple run­ning around in nice scenery, it isn’t enough to make up for the stup.

Com­cast keeps send­ing more and more plain­tive offers, try­ing to get us to sub­scribe to their cable TV and tele­phone ser­vice. When we did sub­scribe to cable, we didn’t get around to watch­ing much. We don’t chan­nel surf or just leavve the set on for noise, so it was wasted money. I sup­pose if we’d also got­ten a Tivo or some­thing sim­i­lar, we would have recorded the shows we watch. But we didn’t, so we still watched them online when we did watch them.

We can still use the tele­vi­sion to view shows, thnks to a nifty cable Sam pro­cured. That’s bet­ter than watch­ing on a com­puter mon­i­tor, and we can watch together. (It isn’t much fun watch­ing alone.)

Cur­rent Mood: (recumbent) recumbent

Time Flies

4 May 2009, 6:06 pm. Comments Off. Filed under General.

I used to get so annoyed when my mother would say, “Twenty years from now, nobody will know the dif­fer­ence.” She was wrong in a sense — I cer­tainly still know the dif­fer­ence, about so very many things.

On the other hand, I do under­stand the longer view much bet­ter now. Twenty years seemed like such a long time then, and now? It’s so very short.

In any case, Katie did get home from her trip to the great north­west. She had a mar­velous time and thinks she has found her school.

I’m really proud of her. She planned this trip, to a place nei­ther she nor any of us had ever been before, all by her­self. She went with­out a qualm, had a mar­velous time, man­aged her money mar­velously, and made some great new friends.

Since then she also went to her first LARP. Again, she had a mar­velous adven­ture, lots of fun, and found a new thing she enjoys. I think we need to acquire camp­ing equipment.

Sam has started play­ing Burn­ing Wheel with a group of local peo­ple. He really enjoys the game. I’m glad to see him get­ting out and hav­ing some social time with others.

I had a big thing hap­pen, but I’m going to stay quiet about it a lit­tle longer, ’til it’s also a sure thing.

In the mean­time, I’ve found a nice out­let for my OCD urges as a “librar­ian” at Good Reads.

 

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